Adapted Driving

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Author: Sharon Jang | Reviewer: Lisa Kristalovich | Published: 6 July 2022 | Updated: ~

Key Points

  • After spinal cord injury (SCI), many people are still able to drive.
  • In order to return to driving, an in-depth driving assessment needs to be conducted by a driving rehabilitation specialist or occupational therapist.
  • There are many different types of modifications that can be made to a vehicle based on your needs and limitations.

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Wheelchair on beachBeing able to drive is an important skill that is helpful for day-to-day activities. Research has shown that being able to drive is related to many benefits, such as:

  • Improved happiness with life
  • Decreased depression
  • Increased access to health vehicle services in the community
  • Increased engagement in daily activities, such as running errands
  • A greater sense of independence

In addition, research has found that driving is associated with being able to work post-SCI. After SCI, one of the biggest barriers to working is a lack of transportation. Being able to drive on your own can address this issue, and promote working.

Many people can still drive after SCI. One study noted that many people with a C4 injury or below are able to independently drive. Although a formal driving assessment is often required before you are able to drive, some positive signs that you will be able to drive again include:

  • Stable SCI – there are no changes to your function
  • You don’t need narcotics to control your pain
  • Good vision/corrected vision
  • Controlled muscle spasms
  • Ability to transfer on and off a toilet

Research also shows that tetraplegics are able to drive as well as able-bodied individuals but have slower reaction times. Nonetheless, many people with SCI are able to drive.

Before getting on the road again, a formal driving assessment is often done by an occupational therapist or a driving rehabilitation specialist. During these assessments, the specialist will go over your medical history, driving history, and goals for driving. In addition, they will evaluate many aspects of your health and functioning, which include the following:

Vision

The specialist will assess if you are seeing things correctly with a vision test.

Physical abilities

Many aspects of your physical abilities will be assessed, including:

  • The strength and amount of movement in your limbs for controlling the vehicle
  • How much are you able to rotate your head and neck to check for vehicles
  • How quickly you are able to react to other vehicles, pedestrians, and other objects on the road (i.e., your reaction time)
  • Balance, which is used for getting in and out of the vehicle and being able to sit still while making turns
  • Hand-eye coordination
Cognition

Driving requires a lot of focus. Some tests will be done to evaluate how well and fast your brain is working. Some of these include:

  • Memory, which can influence remembering the rules of the road and navigating the road
  • Visual processing, or how fast you understand and interpret what you see happening on the road
  • Visual spatial abilities, or being able to identify where things are on the road and judging their distance
  • Visual perception, or your brain’s ability to make sense of what you see
  • Attention, which is required for paying attention to the road
  • Judgement and decision making, which are used in cases of knowing when to go/stop, when to switch lanes, etc.
Mood/behaviours

Mood and behaviours may also be evaluated during an assessment. Some traits may be red flags for driving, including being overly anxious on the road, being impulsive, and being highly irritable.

After you find out what kind of equipment you need to adapt your vehicle, you must learn to use it to drive in a safe manner. Driver rehab provides training and supervised practice using your newly modified vehicle. Some topics that may be covered in driver rehab include:

  • How to use your adaptive driving equipment or perform different driving techniques
  • Cognitive strategies to address issues with memory, attention, etc.
  • Visual strategies to address perception, sight, etc.
  • Anxiety management
  • A reintroduction to the driving environment

Often, you will need to participate in driver rehab sessions until you are able to demonstrate proficiency with using your vehicle modifications under typical driving conditions. In some areas of the world, a road test may be required to get your full license.

Many vehicles can be adapted for driving after SCI. However, the ideal vehicle for you is dependent on your wants and needs. For example, paraplegics tend to transfer into the driver seat of the vehicle, while among tetraplegics, half will transfer to the drivers seat and half will drive in their wheelchair. If you are driving in your wheelchair, you will need a larger vehicle to accommodate the wheelchair. However, if you are transferring into the vehicle seat, you might want a vehicle that is closer to the ground for an easier transfer and wheelchair loading. Larger vehicles like trucks and SUVs may require extra equipment to help with transfers and wheelchair loading.

One study has looked at the measurements of various vehicles. In regards to the height between the ground and the driver seat, they found that the average height is:

  • 22 inches for a sedan
  • 28 inches for a mid-height vehicle (vans, small-medium SUVs)
  • 36 inches for a high-profile vehicle (large truck or SUV)

This study also found that the average difference in height between the driver’s seat and wheelchair seat is 3.7 inches, and ranged from -3.5 inches to 16 inches. This means that for some vehicles, the wheelchair seat may be above the vehicle seat, while in others, they can be up to 16 inches below the vehicle seat. Your ability to transfer is a consideration in what kind of vehicle to buy. Other considerations include how much space you want in your vehicle, where you will be driving your vehicle, and how/where you will be storing your wheelchair if you plan on transferring into the driver seat of the vehicle.

Collision warning braking support is available for some vehicles and can aid in collision prevention.

A vehicle can be adapted in many ways with the use of adaptive driving equipment, or technology used to make your vehicle more accessible. In general, driving is broken into 4 parts:

  • transferring in and out of the vehicle
  • loading your wheelchair
  • using primary controls (steering, accelerating, braking)
  • using secondary controls (e.g., controlling the windshield, signals, radio)

In addition, there are various safety features that can be added to the vehicle to help you drive if you have any limitations. Some driver rehabilitation centers will also complete a vehicle modification assessment. During this assessment, a driving specialist will help you select the equipment to get you and your wheelchair into the vehicle safely.

Transferring in and out of the vehicle

A ramp can be installed to allow for ease of vehicle entry/exit.

When getting in and out of your vehicle, the first consideration is whether you are able to transfer into the driver seat, or if you will stay in your wheelchair. Although it is possible to drive from your wheelchair, some additional considerations include:

  • the original driver seat in the vehicle has been designed to withstand a vehicle crash, and is in an optimal position to be used with the air bag and seatbelt
  • the seatbelt may not fit ideally when in your wheelchair due to the design of a wheelchair

 

Transferring from a manual wheelchair into the driver seat and manually loading the wheelchair

There are many ways to get into your vehicle from a wheelchair. The following is a general overview of the steps.

  1. Transfer into the seat. This can be done using a transfer board, hanging onto a grab bar/ handle, or placing a hand on the seat. Some people choose to transfer by placing their right leg into the vehicle before transferring, or they keep both their legs outside of the vehicle.
  2. Decide where you will place your wheelchair: in the front passenger seat, or the back seats. Those with weaker shoulder muscles should consider loading their wheelchair into the front seats.
  3. Remove the wheels from the wheelchair. This is commonly done by pressing the center button in the middle of the wheel. Place the tires in the vehicle.
  4. Some people remove the cushion and the side guard from the wheelchair. Place these in the vehicle.
  5. Load the wheelchair frame into the vehicle. Reclining the front seat can help you get the frame over your body and into the vehicle.

Driving from the driver seat

Swivel-style car seats can come out of the car or turn inside of the car.

If you have difficulties with transfering or loading your wheelchair there are many adaptations that can be used. Swivel seats are seats that turn and come out of the vehicle, giving you more space to transfer in. Alternatively, a transfer seat can be used. A transfer seat can move up or down in height, can turn, and can be moved in the vehicle for more space. This is done by placing the original driver seat on top of a motorized plate. However, it is important to note that swivel seats are only compatible with some SUV’s, trucks, and minivans, and transfer seats are only compatible with minivans or full sized vans. If you only need a bit of assistance getting in and out of a vehicle, additional grab bars can be installed into a vehicle.

Driving from your wheelchair

If it is decided that it is best for you to drive from your wheelchair, you will need a wheelchair accessible vehicle. To have enough height for a wheelchair to enter, the vehicle is raised up and the floor is lowered. A ramp is then installed. It may come out from the floor or fold out.  Once in your vehicle, it is important to make sure that your wheelchair is stiff enough to provide a stable driving platform, and will not move when you are driving.

Wheelchair tie downs should be used to secure the wheelchair when driving.

Your wheelchair will also need to be secured in place while driving. This can be done with a manual locking system and the help of another person. There are also automated docking systems which anchors your wheelchair without the help of another person. These systems have an additional piece that connects to your wheelchair. The part on your wheelchair clicks into the docking system on the floor of your vehicle. Automated docking systems are controlled electronically. A button installed in your vehicle releases the docking system lock. The part that attaches to your wheelchair weighs 10-19 lbs, and is permanently attached to your wheelchair. Many people using a manual wheelchair have a hard time managing the extra weight on the wheelchair, so this system is usually used with power wheelchairs.

Primary Controls (steering, braking, acceleration)

To help with steering and driving, different handles can be added onto the steering wheel. A spinner knob can be added to make it easier to control the steering wheel. For people with no hand function, a tri-pin add on may be helpful. A tri-pin handle consists of one larger straight prong, and two smaller straight prongs. The larger prong sits in your hand, and your wrist sits between the two smaller prongs. This allows you to use your shoulder and elbow muscles to steer.

Rods can be connected to the accelerator and brakes to allow for hand control driving.

To accelerate and brake, rods are connected to the pedals, and the rod is connected to a handle beside the steering wheel. The handle is pushed forward to brake. Different motions, including depressing, rocking, pulling, or twisting can be used to control the gas. These hand controls are not removable, but the pedals remain in place so an able-bodied person can drive. The vehicle can be shared!

With the advancement of technology, there electronic-based steering adaptations. Some of these technologies include:

  • Power-controlled levers and rods for accelerating/braking: similar to mechanical rods and levers, but with a motor built in to make the movement easier
  • Reduced effort steering: modifications made to the vehicle to reduce the strength required to turn the steering wheel
  • Using joysticks or other electronic wheels to drive the vehicle: a modification can be made to the vehicle so that it is controlled by a computer. The vehicle is then driven with a wheel or joystick that is connected to the computer.

Secondary Controls (windshield wipers, turn signals, etc)

Secondary controls on a button system.

Secondary controls are used to interact with other drivers on the road (such as signaling and using the horn), and to manage the vehicle (e.g., use the windshield wipers, changing the transmission gear, starting the vehicle, managing the heating/air conditioning etc). A lot of these functions can be adapted so that they are controlled with the push of a button. For example, buttons can be placed on the head rest so that they can be pressed with the head, or on the door so that it can be pressed with the elbow. Buttons can activate a single function, or can be used to trigger several functions. The multiple buttons can be programmed to the function of your desire, and can be connected to the steering wheel or other location that is convenient to you. These adaptations come in a variety of set-ups, and will require customization to your needs.

Funding considerations

There are often costs associated with the various parts of getting back on the road. In general, fees are required for the initial driving assessment, rehabilitation both in a clinic setting and on the road, and for adaptive equipment. In Canada, there is often no funding for these costs; this is often paid out of pocket unless you have an injury claim or other funding source. As a result, funding can be a big barrier to returning to driving.
For more information on the related fees, contact your local driving rehabilitation center for.

Considerations when looking to buy a vehicle to adapt

When looking to buy a vehicle to adapt after your injury, some things to consider include:

Transfer abilities

What are your transfer abilities? Will you be staying in your wheelchair to drive or will you transfer to the driver seat? If you are able to transfer, how easy is it for your to transfer to a higher surface? Do you need a ramp to get in and out of the vehicle?

Wheelchair storage

If you are planning on transferring out of your wheelchair, where will you store it? In the front seat or back?

Adaptive equipment required

Does the equipment you need only fit in a certain type of vehicle, such as a van? Can the vehicle accommodate the hand controls you need?

Passengers

If you plan on driving others, will there be enough space for passengers in the vehicle once it has been adapted?

Parking

Will the vehicle fit in the parking space you have?

Some driver rehabilitation centers will also complete a vehicle modification assessment. This assessment will help you select the equipment you need to get you and your wheelchair into the vehicle safely. There is usually a fee for a vehicle modification assessment.

Considerations when driving an adapted vehicle

Two studies interviewed people with disabilities who drove adapted vehicles. Some challenges that were identified by the drivers included:

Pain

Pain was experienced in the wrists when driving long distances, especially with a twist accelerator. Shoulder pain was also reported after driving for a long time. You may want to consider what position your arms are in, what movements are used, and if you can do this over a long period of time.

Trunk strength

Having a weak core resulted in some drivers needing to slow down or brace themselves when driving at high speeds or on winding roads. People with a higher spinal cord injury level often need extra trunk support, as they are unable to use their arms for support when hand controls are being used.

Fatigue

Driving can be tiring in comparison to driving able-bodied, as more focus is required for driving an adapted vehicle.

Accessibility of the environment

Some drivers found that the location they drove to was inaccessible, and they were unable to et out of their vehicle. For example, some garages had a step to get out of them, had a steep hill to the entrance, or if there is not enough space to open a ramp.

After an SCI, many people continue to drive with the use of adaptive driving equipment. There are many modifications that can be made to a vehicle to suit your needs and enable you to drive again. However, prior to hitting the road, you will need to be evaluated by a driving rehabilitation specialist or occupational therapist. This evaluation will help the clinician understand your needs and limitations, and help them determine the best adaptations for you. Although getting back to driving may be a lengthy process, it can be beneficial for your sense of independence, and partaking in activities that you want to do again.

For a list of included studies, please see the Reference List. For a review of what we mean by “strong”, “moderate”, and “weak” evidence, refer to the SCIRE Community Evidence Ratings.

Evidence for “Why is driving after SCI important?” is based on:

Mtetwa, L., Classen, S., & van Niekerk, L. (2016). The lived experience of drivers with a spinal cord injury: A qualitative inquiry. South African Journal of Occupational Therapy, 46(3), 55–62.

Norweg, A., Jette, A. M., Houlihan, B., Ni, P., & Boninger, M. L. (2011). Patterns, predictors, and associated benefits of driving a modified vehicle after spinal cord injury: Findings from the national spinal cord injury model systems. Archives of Physical Medicine and Rehabilitation, 92(3), 477–483.

Evidence for “How do I know if I can drive?” is based on:

Anschutz, J. (2015). Driving After Spinal Cord Injury. Spinal Cord Injury Model System, (October). Retrieved from https://msktc.org/lib/docs/Factsheets/SCI_Driving.pdf

Kiyono, Y., Hashizume, C., Matsui, N., Ohtsuka, K., & Takaoka, K. (2001). Vehicle-driving abilities of people with tetraplegia. Archives of Physical Medicine and Rehabilitation, 82(10), 1389–1392.

Norweg, A., Jette, A. M., Houlihan, B., Ni, P., & Boninger, M. L. (2011). Patterns, predictors, and associated benefits of driving a modified vehicle after spinal cord injury: Findings from the national spinal cord injury model systems. Archives of Physical Medicine and Rehabilitation, 92(3), 477–483.

Peters, B. (2001). Driving performance and workload assessment of drivers with tetraplegia: An adaptation evaluation framework. Journal of Rehabilitation Research and Development, 38(2), 215–224.

Evidence for “What is a driving assessment based on?” is based on:

Anschutz, J. (2015). Driving After Spinal Cord Injury. Spinal Cord Injury Model System, (October). Retrieved from https://msktc.org/lib/docs/Factsheets/SCI_Driving.pdf

van Roosmalen, L., Paquin, G. J., & Steinfeld, A. M. (2010). Quality of Life Technology: The State of Personal Transportation. Physical Medicine and Rehabilitation Clinics of North America, 21(1), 111–125.

Evidence for “What kind of vehicle can I drive?” is based on:

Haubert, L. L., Mulroy, S. J., Hatchett, P. E., Eberly, V. J., Maneekobkunwong, S., Gronley, J. K., & Requejo, P. S. (2015). Vehicle transfer and wheelchair loading techniques in independent drivers with paraplegia. Frontiers in Bioengineering and Biotechnology, 3(139), 1-7.

van Roosmalen, L., Paquin, G. J., & Steinfeld, A. M. (2010). Quality of Life Technology: The State of Personal Transportation. Physical Medicine and Rehabilitation Clinics of North America, 21(1), 111–125.

Evidence for “What adaptations are available for my vehicle?” is based on:

Haubert, L. L., Mulroy, S. J., Hatchett, P. E., Eberly, V. J., Maneekobkunwong, S., Gronley, J. K., & Requejo, P. S. (2015). Vehicle transfer and wheelchair loading techniques in independent drivers with paraplegia. Frontiers in Bioengineering and Biotechnology, 3(139), 1-7.

van Roosmalen, L., Paquin, G. J., & Steinfeld, A. M. (2010). Quality of Life Technology: The State of Personal Transportation. Physical Medicine and Rehabilitation Clinics of North America, 21(1), 111–125.

Evidence for ” What are some considerations when using and buying an adapted vehicle?” is based on:

Christopher and Dana Reeve Foundation (2021). Vehicles and Driving. https://www.christopherreeve.org/living-with-paralysis/home-travel/driving

Hutchinson, C., Berndt, A., Gilbert-Hunt, S., George, S., & Ratcliffe, J. (2020). Modified motor vehicles: the experiences of drivers with disabilities. Disability and Rehabilitation, 42(21), 3043–3051. Retrieved from https://doi.org/10.1080/09638288.2019.1583778

Mtetwa, L., Classen, S., & van Niekerk, L. (2016). The lived experience of drivers with a spinal cord injury: A qualitative inquiry. South African Journal of Occupational Therapy, 46(3), 55–62.

Image credits
  1. Wheelchair holiday bea disabled summer ©LonelyTaws, Pixabay License
  2. Eye ©Veronika Krpciarova, CC BY 3.0 
  3. Stretch ©Andrejs Kirma, CC BY 3.0 
  4. Brain ©Amethyst Studio, CC BY 3.0 
  5. Mood ©shuai tawf, CC BY 3.0 
  6. Adapted wheel with spinner, ©SCIRE Community Team
  7. Honda Odyssey (2018-present) ©Kevauto, CC BY-SA 4.0
  8. Eighth-generation Civic sedan ©OSX, CC 0
  9. Ford F-150 crew cab – 05-28-2011 ©IFVEHICLE, CC 0
  10. Collision warning brake support ©Ford Motor Company, CC BY 2.0
  11. Adapted Van ©SCIRE Community Team
  12. Haubert, L. L., Mulroy, S. J., Hatchett, P. E., Eberly, V. J., Maneekobkunwong, S., Gronley, J. K., & Requejo, P. S. (2015). Vehicle transfer and wheelchair loading techniques in independent drivers with paraplegia. Frontiers in Bioengineering and Biotechnology, 3(139), 1-7.
  13. A disabled man in a wheelchair getting out of a vehicle ©CDC/Amanda Mills, CC 0
  14. BraunAbility Turny Evo Handicap Swivel Vehicle Seat Transfer Seat ©BraunAbility, 2020
  15. BraunAbility B&D Transfer Seat ©BraunAbility, 2020
  16. Special, vehicle, wheelchair ©CDC/Amanda Mills, CC 0
  17. QRT-360 ©Q’Straint, 2021
  18. Sure-Grip Tri-pin Spinner Knob ©Indemedical, 2021
  19. Adapted driving levers and rods. ©SCIRE Community Team
  20. Bever 8-touch Keypad ©Bever Mobility Products Inc
  21. Money ©Mahabbah, CC BY 3.0 

 

Disclaimer: This document does not provide medical advice. This information is provided for educational purposes only. Consult a qualified health professional for further information or specific medical advice. The SCIRE Project, its partners and collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication.

Housing After SCI

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Author: Sharon Jang | Reviewer: Rachel Abel | Published: 25 May 2022 | Updated: ~

Finding adequate housing after a spinal cord injury (SCI) can be difficult, but is important for quality of life. This article addresses housing concerns and adaptations after SCI.

Key Points

  • Having housing that is optimal for your needs can improve reintegration back into the community.
  • Many factors play a role in where you are discharged to after being in the hospital. These factors include how well you can do basic self-care tasks, age, degree of impairment, and whether you have insurance.
  • To make a house accessible, you can find/build a house that has been built for accessibility, or make your own adaptations for the home.
  • There are a variety of adaptations and modifications that can be made in all rooms of the home to make it more accessible.

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After a spinal cord injury (SCI), there is often an increased need for social support and accessibility in the environment. Due to these factors, careful planning and consideration is required for optimal housing. Housing is an important factor in transitioning back into the community, which is a strong predictor of quality of life. Some (weak) evidence has noted that housing can influence quality of life as it:

  • Creates opportunities for community participation through its physical location (e.g., being close to community centers, libraries, shops, etc.).
  • Creates a sense of safety.
  • Promotes independence, if the house is accessible.
  • Allows for socialization with family and friends.

If there is a mismatch between housing needs and the home a person is discharged to, weak evidence suggest that a variety of difficulties may arise, including:

  • A loss of friendships.
  • A lack of care or assistance.
  • Negative experiences with other people, related to being in a wheelchair.
  • A lack of control over daily activities.
  • A lack of flexibility and restriction of participating in work and leisure.

Moving back into the community after SCI is both a test of the supportiveness of the environment, and the resilience and resourcefulness of the individual. These factors can determine the success of the transition back into the community. This article will specifically focus on optimizing housing after SCI.

After SCI, there are many factors that influences whether or not one can go home. These include:

  • Not being psychologically ready.
  • Inaccessible transportation or home.
  • A lack of social support.

Where an individual will live after being discharged from a hospital or rehabilitation center is dependent on many factors, including:

How well you can perform basic self-care tasks independently

Self-care tasks include activities such as bathing, feeding, and dressing yourself. In research, this is often measured through a test called the Functional Independence Measure (FIM). Some weak evidence shows that lower levels of independence will increase the likelihood of moving into a nursing home, as one would require a higher level of care.

Degree of impairment

Those who are AIS D (i.e., those with movement and near-normal strength in at least half the muscles below the level of injury) have access to greater housing opportunities. This is related to the fact (weak evidence) that individuals with AIS D face less environmental barriers and require less housing adaptations.

Age

One weak evidence study has found that older individuals are 4% more likely to be discharged to an extensive care unit or nursing home.

Having pre-existing medical conditions

If one has pre-existing medical conditions prior to sustaining an SCI,weak evidence suggests that there is 10x greater chance of being discharged to a nursing home.

Insurance/private funding for equipment

One study indicated that being able to afford adaptive equipment may increase the chances of being discharged home. This is one of the most significant factors in returning home as funding is required for adaptive equipment, renovations, care, and other supplies. It is important that an individual is able to live independently in their homes.

When looking for a home after injury, one may choose to rent, buy, renovate, or build a home. If you decide to renovate or build a house, some ways you may design your home include creating a livable house or an adaptable house.

Livable housing

A house built with universal design includes no steps/stairs from the start. 7

Livable housing are houses that are developed to be fully accessible despite changing needs throughout one’s life. That is to say, they are built with accessibility in mind. This type of housing embraces the concept of universal design. Universal design is a concept in which buildings and products are created so that they are usable by all people without the need of adaptation or specialized design. Applied to a home, universal design could include designing a home without steps rather than having to add a ramp later, or having doorways wide enough to accommodate wheelchairs if needed. Universal design is most often implemented in the building phase, and is not implemented once the house is already built.

Adaptable housing

Adaptive housing are places of residence that have additional accessibility modifications for people with disabilities. This includes changes such as lowered cabinets, changing the kitchen to have leg room under the countertop, or changing the layout of the laundry room to make it more accessible.

Considerations prior to modifying your home

Talking with a peer prior to making modifications to your home can be greatly beneficial. 8

Modifying your home can be an exciting but costly process. Before you start making changes to your house, some things to consider include the following:

  • What are you able and unable to do? Keep your abilities in mind and remind yourself of the key changes need to be done to help you to avoid over-designing your home.
  • Who can you turn to for advice? While there are specialized companies that exist that can provide recommendations for your modifications, also be sure to chat with another peer with SCI for advice. They may have additional insight, or referrals to reputable specialized contractors. Additionally, occupational therapists are equipped with specialized knowledge to make a home more accessible.
  • What equipment works best for you? Make sure you try out equipment to ensure that they will work for you before you buy!

There are many features that can be included or added to a home to make it more accessible. Below, we list some ways homes may be adapted. This list is not exhaustive. It is important that you discuss things with peers, and experts in home design/building to see what works best for you and your home. For more photos, please refer to SCI Saskatchewan’s Accessible Housing page.

In the kitchen above, note the stove dials on the front of the stove, the lowered sink, and the space to wheel under it.9

Kitchen

Kitchens can be inaccessible after SCI due to inaccessibility stoves, a lack of leg space under counters, and counters and sinks being too high. Some modifications that can be made in the kitchen include:

  • Putting in lowered counter tops.
  • Ensuring there is space to wheel under the counter and stove.
  • Using a wall-mounted oven so that it is at an appropriate height.
  • Having drawers and cupboards with lever-style knobs (versus rounded knobs).
  • Placing the stove next to the sink to facilitate easy transfer of a pot to a sink for draining.
  • Having stoves with knobs at the front, which are easier to reach and use.

This bedroom has light switches at head height on both sides of the bed, and ample space around the bed for moving.10

Bedroom

Some modifications that can be made in the bedroom include:

  • Ensuring there is enough space on both sides of the bed to wheel.
  • Having a shorter bedframe or box spring to facilitate transfers from manual wheelchairs.
  • Having hardwood or laminate flooring to maximize wheeling in the room, although a low pile carpet may be okay as well.

Placing a second, lower bar in the closet for easier reach.

 

An adapted roll in shower with grab bars and a handheld shower head (left), and a sink with space to wheel under (right).11-12

Bathroom

Bathrooms are often the number one barrier in a home, specifically the shower. Some things to consider include the toilet height, the sink height, and the shower/tub. Some newer buildings use toilets with higher seats as they are easier for older adults to stand up, but this can make transferring an issue. Some modifications that can be made in the bathroom include:

  • Using non-slip tiles.
  • Installing a grab-bar for toilet or shower transfers.
  • Having adjustable angles on mirrors.
  • Installing roll in showers, with sides of the shower on a slight angle towards the drain.
  • Using a handheld shower head, with connection to a rail for adjustable height.
  • Placing wheel-in sink – sinks with space under them for a wheelchair to fit.
  • Adding a raised toilet seat or a taller toilet for easier transfer.

Living room

Living rooms can be busy spaces filled wit#q2nh furniture and electronics such as televisions. Some modifications that can be made to make the living room more accessible include:

  • Using arm chairs with a straight back and arm may provide support for rising and sitting.
  • Obtaining an electric reclining chair, which can help for repositioning and is easy to operate.
  • Ensuring there is enough space between furniture to maneuver.
  • Using hardwood flooring throughout the main common rooms.
  • Having low windows so you can see out them.
  • Having an open concept living room/dining room for easy moving.
  • Using gas fireplaces for easy lighting.

A lever-style door knob (left) and a lock key-pad (right) are some adaptations that can be used.13-14

Exterior

  • Replace round doorknobs with lever door handles.
  • Use a keyless entry/ use of a code pad lock in place of a traditional key.
  • Use a folding ramp to go up a few stairs.

Other

  • If building a ramp, ensure that the ramp is at least a 1:12 grade (i.e., for every one meter in elevation, the ramp should be 12 meters long).
  • Create slip resistant surfaces with products such as non-slip strips, carpeting, or sand paint.

While renovations can make a home more accessible, it may not be in the budget for everyone. Instead, there are alternative lower cost strategies that can be used to improve accessibility in a home. These include the use of technology, addition of loops and straps, and modifications to existing home set-ups.

Smart devices. 15

Using technology for accessibility

With the advancement of technology, smart home features allow an individual to control various parts of the home through voice. With the use of devices such as the Google Home and Amazon Alexa, parts of the home such as lights, televisions, and the thermostat can be controlled with verbal commands. Alternatively, there are some models of powered wheelchairs that now come equipped with Bluetooth technology. This allows you to connect and control Bluetooth devices, such as lightbulbs, stereos, phones, and computers, with controls on a powered wheelchair.

A person opening a fridge door with their wrist. A loop has been added to the fridge door handle to facilitate this.16

Addition of loops and straps

A low-cost method of increasing accessibility of doors and drawers is through the addition of loops and straps. Loops and straps can be added to existing handles, such as on drawers, a fridge door, or on cabinets, to allow individuals to open these structures with their wrist or elbow. If possible, handles can also be swapped out for more accessible ones, such as bar-style handles.

Modifications to existing structures

While one can modify their homes with extensive renovations, there are also minor things an individual can do to improve accessibility around the home. In the kitchen, consider removing cabinet doors lower down. This can allow for more leg room under sinks and countertops. Moreover, those with limited strength may want to consider rearranging the kitchen so that heavier objects (such as dishware), are lower down, or removing heavy objects altogether (e.g., by replacing ceramic dishware with plastic).

If doors are an issue in the home, typical door hinges may be replaced with Z-shaped or swing-away door hinges. These alternative hinges allow doors to open wider, which creates more space for a wheelchair to get through. As noted in the previous section, lever-style doorknobs can also be used to replace rounded doorknob to facilitate the opening of doors.

Examples of adaptive equipment that can be used to control stove knobs.17-18

Adaptive equipment

In addition to renovations and modifications to the home, there are a variety of adaptive equipment that may make a home more accessible. For example, for those who are unable to reach or turn stove knobs, there are adaptive knob tuners available. Occupational therapists specialize in adapting spaces and equipment to meet each individual’s unique needs. For more information, refer to an occupational therapist.

Having housing that suits your unique needs after an SCI is important for community re-integration and your quality of life after injury. While there is the option of building a new house from scratch, it may be more feasible to adapt an existing home to increase accessibility and independence at home.

It is best to discuss all options with an occupational therapist or construction specialist to find out which modifications and equipment are suitable for you.

It is best to discuss all treatment options with your health providers to find out which treatments are suitable for you.

For a review of what we mean by “strong”, “moderate”, and “weak” evidence, please see SCIRE Community Evidence Ratings.

Parts of this page has been adapted from SCIRE Project (Professional) Housing and Attendant Services: Cornerstones of Community Reintegration after SCI” Chapter:

Boucher N, Smith EM, Vachon J, Légaré I, Miller WC (2019). Housing and Attendant Services: Cornerstone of Community Reintegration after Spinal Cord Injury. In Eng JJ, Teasell RW, Miller WC, Wolfe DL, Townson AF, Hsieh JTC, Noonan VK, Loh E, McIntyre A, Querée M, Benton B, editors. Spinal Cord Injury Rehabilitation Evidence. Version 6.0. Vancouver: p 1- 35.

Available from: SCIRE Professional Site

Evidence for “Why is housing important?” is based on:

Bergmark, B. A., Winograd, C. H., & Koopman, C. (2008). Residence and quality of life determinants for adults with tetraplegia of traumatic spinal cord injury etiology. Spinal Cord, 46(10), 684–689. https://doi.org/10.1038/sc.2008.15

Dickson, A., Ward, R., O’Brien, G., Allan, D., & O’Carroll, R. (2011). Difficulties adjusting to post-discharge life following a spinal cord injury: An interpretative phenomenological analysis. Psychology, Health and Medicine, 16(4), 463–474. https://doi.org/10.1080/13548506.2011.555769

Smith, B., & Caddick, N. (2015). The impact of living in a care home on the health and wellbeing of spinal cord injured people. International Journal of Environmental Research and Public Health, 12(4), 4185–4202. https://doi.org/10.3390/ijerph120404185

Evidence for “What factors influence where I will live after the hospital?” is based on:

Azai, K., Young, J., McCallum, J., Miller, B., & Jongbloed, L. (2006). Factors influencing discharge location following high lesion spinal cord injury rehabilitation in British Columbia, Canada. Spinal Cord, 44(1), 11–18. https://doi.org/10.1038/sj.sc.3101778

Gulati, A., Yeo, C. J., Cooney, A. D., McLean, A. N., Fraser, M. H., & Allan, D. B. (2011). Functional outcome and discharge destination in elderly patients with spinal cord injuries. Spinal Cord, 49(2), 215–218. https://doi.org/10.1038/sc.2010.82

Norin, L., Slaug, B., Haak, M., Jörgensen, S., Lexell, J., & Iwarsson, S. (2017). Housing accessibility and its associations with participation among older adults living with long-standing spinal cord injury. Journal of Spinal Cord Medicine, 40(2), 230–240. https://doi.org/10.1080/10790268.2016.1224541

Evidence for “How do I make my house accessible?” is based on:

Palmer, J., & Ward, S. (2013). The livable and adaptable house. Retrieved from: https://www.yourhome.gov.au/housing/livable-and-adaptable-house

Muir, K. (2020.) Adapting a home for wheelchair accessibility. Retrieved from: https://www.sralab.org/lifecenter/resources/adapting-home-wheelchair-accessibility

Evidence for “What does accessible housing look like?” is based on:

SCI Saskatchewan. Accessible housing. Retrieved from: https://scisask.ca/accessible-housing/

Muir, K. (2020.) Adapting a home for wheelchair accessibility. Retrieved from: https://www.sralab.org/lifecenter/resources/adapting-home-wheelchair-accessibility

Pettersson, C., Brandt, Å., Lexell, E. M., & Iwarsson, S. (2015). Autonomy and housing accessibility among powered mobility device users. American Journal of Occupational Therapy, 69(5), 1–9. https://doi.org/10.5014/ajot.2015.015347

Image credits
  1. Woman in red and white long sleve shirt sitting on wheelchair ©Marcus Aurelius. Pexels License
  2. bathing ©ProSymbols, US. CC BY 3.0
  3. Modified from Outlines. ©Servier Medical Art. CC BY 3.0
  4. Birthday Candles. ©SCIRE Community Team
  5. Health. ©StringLabs, ID. CC BY 3.0
  6. ©SCIRE Community Team
  7. Architecture clouds daylight driveway. ©Pixabay. CC0
  8. Hamburg St Pauli Wheelchair Users. ©fsHH. Pixabay License.
  9. Wheelchair Accessible Kitchen ©bflosab. CC BY-NC-ND 2.0
  10. Inside our casita. ©Night Owl City. CC BY-NC-SA 2.0
  11. After. ©Amanda Westmont. CC BY-NC-SA 2.0
  12. Accessible Sink © Fairfax County CC BY-ND 2.0
  13. Door Handle. ©www.trek.today. CC BY 2.0
  14. Finished installation of a Schlage Key Pad Door lock system on a full light front door. ©Larry Spalding CC BY-SA 4.0
  15. Google home with home hub and home mini on table. ©Y2kcrazyjoker4 CC BY-SA 4.0
  16. Loop on fridge. ©Rachel Abel
  17. Stove knob reacher. ©Rachel Abel
  18. Adaptive stove knob turner. ©Rachel Abel

 

Disclaimer: This document does not provide medical advice. This information is provided for educational purposes only. Consult a qualified health professional for further information or specific medical advice. The SCIRE Project, its partners and collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication.

Our People: John Cobb

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Authors: Sarah Yada Seto, Dominik Zbogar | Published: 30 November 2021

 

 

Insights and Experiences of an Occupational Therapist

We spoke to John Cobb, Occupational Therapist (OT) in the Acute Spine Unit at Vancouver General Hospital. John has been an OT for 28 years and provides his advice and insights on his role, and how work in this field has evolved over the years. 

Can you describe your role as a healthcare provider? 

I work in acute care, so I primarily look after people with new injuries – they tend to be traumatic injuries from car accidents, falls, and sports. We also admit patients with spinal cord injury (SCI) from cancer as well as infections. The length of stay for patients varies from about 3 weeks and, in rare cases, up to a year. It’s about taking care of people and doing much more than just applying your knowledge and skills. People with SCI are in a tough spot, and don’t know what to do next. You need to connect with the person, help them be empowered and regain control of their life. 

What changes have you seen in rehab, treatment and outcomes for people with SCI over time? How has your rehab practice changed over time? 

There has been a big shift to evidence-based practice and standardization. Nowadays, the work is based on both clinical experience and knowledge, but also by integrating research outcomes and taking things from ‘bench to bedside’. In terms of those first hours and days, and how people are diagnosed … all of that has improved. The surgical management they receive has also improved. With continued revisions to the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) – the diagnosis tool we use – more and more patients are being diagnosed as incomplete. It’s interesting. It may be that more incomplete injuries occur these days, but the increase could be the result of being more accurately diagnosed. The diagnosis sets the trajectory of care. We can now say to people – an incomplete injury is more ‘open’ in terms of the possibility for improvements. There are now different expectations and different hopes.

What are some of the greatest challenges you have seen in your field?

One of the biggest challenges relates to the complexity of the injury. On a medical and physical level it’s managed pretty well in the acute and rehabilitation phases of care. With some long-term issues like spasticity and pain, a lot of work has been done but I still think that the spinal cord injury community would say its not good enough yet. They would say, “If I have to live with a SCI, could I at least be pain free?” There’s a certain kind of complexity, acuity, and dependency that are thrust upon these individuals in the beginning, and then there is the ‘push and pull’ of the system that is trying to meet those needs. Challenges related to having the time, equipment, space, technology that you need to do your best job arise. It’s not all bad… but I do feel that people are discharged out of the formal health care system quickly. 

What inspires you most about your role? 

First, it’s the staff who are willing to go the extra mile and do whatever they need to do. They give their patients every chance to succeed. Second, it’s the people who are newly living with SCI and have every reason to give up, and complain, and be mad… but they just find a new and unique way to dig deep, face the challenge, and have a good life! 

How has technology in rehab advanced over time?

Innovative technology is constantly being created and developed. Matching the right tech with the right person is key. I hope the next big step will be to make all these innovations universally available – quickly, easily, and affordably. If a piece of technology is awesome but a person cannot have it, it does them no good. Apple products tend to be disability friendly and starting with that can simply mean, “Hey, let’s turn on your voice control so you can control your iPhone or iPad.” SCI is so complex though – you can have tech like voice control to access your iPhone, but it doesn’t mean you are completely physically independent. In acute care – if you don’t have somebody to set you up but you need it, then it doesn’t even matter if the tech is in the room… Sometimes it feels like the system does not want to deal with that level of detail, but living with SCI is in the details. 

What are some of the best resources you recommend for people with SCI? 

For those who are in acute care and rehab, I think one of the best resources is the knowledgeable staff; there are many professionals who are deeply dedicated to this unique population. Also, there are lots of community-based organizations that are there to provide ongoing support including SCI-BC and SCIRE Community. Once the patient returns to the community – it’s invaluable to connect with other people with SCI who have lived it and know it. It’s really big. My hope that is that everybody that goes into the community will connect with someone.

What keeps you sane?

Sometimes I like being by myself and getting in some quiet time, but usually I’m pretty active. Vancouver is great for staying active – and I have a close network of family and friends. I enjoy hiking, cross-country skiing, going out on the seawall, and going to restaurants when I can! 

What advice do you have for those who will be entering your field?

This work is not easy but it’s important – and people will truly rely on you to be excellent and for that reason, it’s completely worth it.

Our People: Sherry Caves on Motherhood

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Authors: Sarah Yada Seto, Dominik Zbogar | Published: 4 March 2021

 

Resilience Has No Bounds –
Sherry’s Journey as a Mother Living With SCI

When you first meet Sherry Caves, you can immediately sense she has a strong will, and is full of determination. Hit by a drunk driver when she was just seven years old, Sherry is paraplegic and has undergone 13 or 14 spinal surgeries over the years. Despite this accident, Sherry continues to live an active life, full of adventure – she’s gone sailing, hiking, zip lining and even bungee jumping. She and her husband, Darryl, also have a son, Aidan, now 26-years old.

“I never grew up feeling like I had much of a disability,” Sherry mused. “As a teenager, when I travelled from my hometown to compete in sports, I had met one or two girls my age with an SCI. As an adult, though, I really didn’t know many girls or women with an SCI. “When I became pregnant with my son, Aidan, I tried to seek out peers that had experienced pregnancy and parenting but with no luck. So, I went through it with a bit of ignorant bliss; with the same angst as any other mom-to-be but not knowing how my body was going to respond as I grew. I soon realized that doing this while living with an SCI … that your disability could be magnified and at times be at the forefront.” When Aidan was born, Sherry and Darryl’s lives changed like any new parents’ lives would. Sherry quickly found ways to adapt to her new life as a mom. Back then it was less about technological help, and more about the mental strength and fortitude to persevere during the ups and downs of raising a child.

What years were the most challenging for Sherry as a mother? “I’d have to say when your child is under 2 years old, and is not mobile. For me, when he was a baby to toddler, it was more of a physical challenge; it was a little harder for me, with balance and with being fused. I learned that when I dressed him in overalls, it made it easier to grab hold of this crawling baby from the floor. Over time, a certain dynamic develops – children discover quickly that you aren’t able to pick them up the same way as others perhaps and they figure out how to crawl up using your chair to get on your lap. They’re always motivated to be with you. After that, it’s normal parenting.”

“I lived in the West End and would have Aidan walk beside me from when he was about 2 or 3. My rule was that he would have to have his hand on my lap for safety if just he and I were out for a walk. If he took his hand off my lap, he knew he’d be back on my lap or we’d go home. He learned it was all about safety.”

The family’s passion for the outdoors continued through the years raising Aidan. She needed to find adaptable ways to cope with wheeling across grass, parks, and beaches. During those times she would often use a scooter for a day outing to English Bay or Second Beach pool back when Aidan was 4 or 5 years old. In recent years, using a Freewheel attachment has been helpful.

“You want to keep up with them. You don’t want to limit them. There has been an explosion in wheelchair technology recently which I didn’t have access to when my son was younger. Nowadays there are power assist wheels or e-front wheel drive attachments that are quite affordable that enable a level of independence depending on your level of SCI. I’ve also had the same handcycle since my son was about 9 years old – I wished I had a Bionx (e-bike motor add-on) back then! They came out with them years later and it allowed me to cycle easier and more enjoyably while keeping up with the family.” Fostering a love for cycling would propel Aidan to eventually become a member of the Canadian Men’s National Track Cycling Team, medaling at several international World Cups, Commonwealth Games and multi-Pan-American games, retiring just this year.

Sherry Caves, pictured here with husband, Darryl and son, Aidan, on the Access Challenge overnight hike in Manning Park over 20 years ago.

Does Sherry have any final words of advice for people living with SCI – looking to become new parents in the future – particularly when the world is facing a global pandemic? “It’s wonderful, rewarding, and challenging. Focus on your health. If you’re not healthy, it complicates everything. COVID-19 has added that extra layer of risk. But I feel people with SCI have already been down for the count with issues like AD, wounds or UTI’s. You just have to stop, recalculate and wait until you’re healthy, and start again. I guarantee this isn’t the first time we’ve all had to stop and restart.”

“Join a support network. SCI-BC and BCMOS (BC Mobility Opportunities Society) are great resources and have awesome support networks. A friend and I started a ‘Women with SCI’ support group years ago and to this day, there are about 10 of us that still go out for lunch and dinner (pre-COVID-19 times).” Sherry stops for a moment and adds one more word of advice. “Take things in stride – life is ever changing. No one phase will ever stay the same.”

These are words that all of us are sure to agree with and can take to heart.

Understanding Rehabilitation

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Author: SCIRE Community Team | Reviewer: Shannon Sproule | Published: 25 September 2017 | Updated: ~

Rehabilitation is an important part of recovery after spinal cord injury (SCI). This page explains what rehabilitation is and what to expect in rehabilitation after an SCI.

Key Points

  • Rehabilitation is the process of recovering function and independence after a spinal cord injury.
  • Rehabilitation is an active process where a person works together with their family and healthcare team to achieve their rehabilitation goals.
  • Rehabilitation programs involve many different activities, such as managing medical problems, developing mobility and independent living skills, adjusting to the injury, and planning for return to the community.
  • How long a person stays in rehabilitation depends on many factors, such as the characteristics of the injury, where they live, and how much support they have. In Canada, the average stay in rehab after a traumatic SCI is around 70 to 80 days.

Rehabilitation is the process of recovering function and independence after a spinal cord injury (SCI).

Part of rehabilitation may focus on developing mobility skills, like walking or using a wheelchair.1

‘Rehabilitation’ (or simply ‘rehab’) describes both this process and the health services (like the programs, hospitals, and centers) that support it.

After leaving an acute care hospital after SCI, most people move to a ‘rehabilitation center’ or ‘rehabilitation hospital’, where they focus on recovering and developing the skills for living with an SCI long-term.

Rehabilitation is tailored to each person’s unique needs and goals. It may involve medical and nursing care, rehabilitation therapies (like physiotherapy, occupational therapy, or respiratory therapy), and a number of other health services to help ease the transition from the hospital to the community.

 

Susana describe her experience with regaining hand function through rehabilitation.

 

Listen to Lidia describe what going through rehabilitation was like for her.

Rehabilitation may be provided in several forms based on the needs of the person and their environment.

A woman lying in a hospital bed

Inpatient rehabilitation involves overnight stays and coordinated support in daily activities.2

Staying overnight in rehabilitation (Inpatient rehabilitation)

Inpatient rehabilitation is when a person stays overnight at a rehabilitation centre. They receive full-day programming including medical, nursing, and therapy services and assistance with meals, bathing, and dressing. Inpatient rehabilitation is the most intensive type of rehabilitation.

Visiting rehabilitation for select services (Outpatient rehabilitation)

Outpatient rehabilitation is when a person who is living in the community visits a rehab centre or clinic for regular services. Outpatient rehabilitation may be used by people who have already completed inpatient rehabilitation or do not need to stay overnight in rehab.

SCI rehabilitation programs

Specialized SCI rehabilitation programs may be available in larger communities in addition to more standard services. These programs offer SCI-specific services like special clinics for wheelchair seating, sexual health, and employment counseling. 

 

Community-based rehabilitation

Community-based rehabilitation involves receiving services from a community-run rehabilitation centre. These centres offer support for rehabilitation within a community-oriented local setting and may provide a wide variation of different services based on the centre, local environment, and healthcare system. Community-based rehabilitation is an important component of rehabilitation, especially in places where formal healthcare services are unavailable or inaccessible.

The SCI and most other early medical problems are typically diagnosed and treated in the acute care hospital before rehabilitation. However, medical testing and imaging may also be done during rehabilitation to monitor healing and to diagnose any new health problems. Testing done in rehabilitation may include:

  • The International Standards for Neurological Classification of Spinal Cord Injury exam (or ASIA Exam) is often done at several points during rehabilitation to monitor recovery.
  • Physical testing includes testing for important specific physical levels related to function and independence. For example, assessing strength (more than AIS exam does), bladder control (such as residual volumes), pain (visual analog scale). Many specific outcome measures are used.
  • Outcome measures are special tests that measure progress or change in a one particular area. These tests may involve verbal or written questionnaires and tests of physical function (like walking for a set length of time or wheelchair skills) or Psychological adjustments (like quality of life measures). Common tests include the Functional Independence Measure and the Spinal Cord Independence Measure. These tests are often repeated multiple times, which is an important way of measuring progress over time.

Medical testing and imaging

An emergency room with one bed, two computer monitors, and other equipment

After being treated for acute medical conditions in the emergency room, various assessments and medical tests may be performed.3

Most medical testing and imaging is done in the acute care hospital before rehabilitation. However, some of these tests may be done to monitor changes or if new health problems arise. These may include:

A cartoon pen and clipboard with check marks and x marksThe goals of rehabilitation are different for everyone. Every person has a unique spinal cord injury and different priorities about what is important to them. Goal setting can help focus efforts on what each person really wants to achieve during rehabilitation.

Goal setting in rehabilitation involves developing specific and measurable goals together with the input of the healthcare team and family. A specific plan is then agreed upon to work towards achieving those goals.

The main focus of rehabilitation is to develop the skills needed to live with an SCI. This focuses on living with or without assistance either in an independent residence or a facility. Rehabilitation involves a wide range of activities and therapies, including those that focus on:

  • Managing medical problemsSilhouette of a person lying on a bed and a healthcare provider talking at the end of the bed
  • Supporting adjustment to the injury
  • Developing mobility and independent living skills
  • Planning for return to the community

The activities that make up a person’s rehabilitation depend on the person, their SCI, their discharge environment, support and funding, as well as personal priorities.

A number of medical problems may be present during rehabilitation. Medical problems are addressed through the care of your healthcare team and by developing the knowledge and skills to manage these problems long-term.

Man sitting on power wheelchair with assistive control devices

Some people with SCI need help with breathing and coughing.6

  • Skin care involves caring for the condition of the skin and treating and preventing wounds and pressure ulcers. This may involve pressure relief techniques, specialized seating, and nutritional changes along with skin care education. Treatment for active wounds may involve  wound dressings or treatments, medications, equipment or mobility recommendations to address possible causes.
  • Bowel care involves a variety of physical, dietary, and medication treatments for managing bowel problems. It will also involve learning about how to manage bowel care once you leave rehab.
  • Bladder care involves regularly emptying the bladder using catheters or other techniques, treating problems like urinary tract infections, and staying hydrated. It also involves learning how to manage bladder care once you leave rehab for long term bladder health.
  • Pain management involves trying different medications, physical strategies, and other techniques to manage pain effectively.
  • Spasticity care involves learning about spasticity and using treatments like medications, exercise, and positioning reduce spasticity.
  • Respiratory (breathing and coughing) care may involve breathing and coughing exercises, care for lung infections, and learning to use equipment and manage breathing once you leave rehab.
  • Autonomic dysreflexia management involves recognizing autonomic dysreflexia and understanding how to prevent and treat it.
  • Clinician sitting with a patient at ICORD in discussion

    Working with a sexual health clinician may be a part of rehabilitation.7

    Blood pressure care may involve learning to manage and care for orthostatic hypotension and other blood pressure problems using medications, exercise, compression garments, or change to salt and fluid intake.

  • Sexual and reproductive health is an important part of health. Consultation with sexual health clinicians can be an important part of rehab after SCI.
  • Brain injuries and concussions can often happen at the same time as an SCI. Care for these injuries involves consulting with brain injury specialists and receiving treatments for these injuries.
  • Other injuries and issues may arise during rehabilitation that need to be managed such as muscle or bone issues, nerve entrapment, carpal tunnel and upper extremity dysfunction.

SCI is a life-changing event that can lead to a variety of different emotional and psychological responses that are unique to each person. It is common for people to experience sadness, disbelief, anger, grief, confusion, helplessness, anxiety, loss of self-image, or difficulties coping. Other individuals may develop mental disorders like depression, substance abuse, or post-traumatic stress disorder. There is no predictable response that everyone will have after experiencing an SCI; it is different for everyone.

Support for adjustment and coping during rehab may include:

Four smiling healthcare providers lined up behind each other

In addition to providing direct medical care, your healthcare team can provide education on transitioning into rehab.8

  • Assessment and treatment from mental health professionals like social workers, counselors, or psychologists.
  • The rest of the health team, like your doctors and nurses, are also an important resource for bringing up mental health questions or concerns. They can provide you with resources and referrals for support services, counseling, and medications.
  • Support from loved ones like family and friends can also be an important part of managing after an SCI.
  • Many SCI organizations provide peer-support programs or groups, where you can meet with other people who have experienced an SCI.
  • Other things like taking an active role in your treatment and recovery, being honest about your feelings and what you need to manage your health and wellness, seeking out positive and active ways of coping, seeking out treatment for problems you identify, and staying socially engaged can all be helpful ways of managing after the injury.

Refer to our article on Depression After Spinal Cord Injury for more information. 

 

Hear Ivan’s advice on being honest with oneself after an SCI.

 

Listen to Louise speak about the impact of seeking social support after an SCI.

There are a number of mobility and independent living skills that play an important role in everyday life. These skills may be practiced during physiotherapy, occupational therapy, and other daily activities in rehabilitation.

Transferring from a bed to a wheelchair.9

    • Bed mobility is the ability to move between different positions while lying in bed. This includes skill like turning while in bed or moving into a sitting position at the edge of the bed.
    • Sitting balance is an important part of many other skills like transfers, getting up to standing, and wheelchair skills. It may be worked on specifically or incorporated into other exercises.
    • Transfers are techniques for safely moving between different positions and surfaces. For example, moving from a bed to a wheelchair is a type of transfer. Transfers may also involve the use of mechanical lifts, transfer boards, and the direction of caregivers.
    • Selecting a wheelchair and other equipment is an important part of rehabilitation. Therapists work with each person to select a wheelchair based on their needs. It should be properly fitted to avoid pressure sores, ensure comfort, maintain posture, function, and prevent complications. Other equipment like beds, mattresses, and devices for toileting and bathing are also important for independent living.
      A robotic exoskeleton

      A robotic exoskeleton used for walking.10

    • Wheelchair skills may include a variety of different techniques such as going up sidewalk curbs safely and opening doors. Wheelchair skills are usually taught one-on-one or in class.
    • Walking skills may be practiced in rehabilitation. This may involve a variety of different strategies, which usually progresses from standing to stepping to walking. It may also involve strengthening exercises, assistive devices like canes, walkers and parallel bars, and braces and orthotics. Some facilities use special equipment such as body weight supported treadmill training and robotic exoskeletons.
    • Resistance (strength) training may involve the use of pulleys, free weights, body weight, and exercise bands. People who have greater weakness may also use slings, springs or pool exercises (hydrotherapy) to help build strength during therapy, group classes, or on their own.
    • Aerobic exercise is exercise that trains the heart, lungs, circulatory system through repetitive and movements for a long time.Aerobic exercise is a very important part of maintaining cardiovascular fitness. Aerobic exercise in rehabilitation may involve activities like arm cycling, functional electrical stimulation cycling and supported walking using parallel bars or body-weight support.
      A woman on a wheelchair arm cycling at the gym

      A person with SCI arm cycling.11

    • Electrical stimulation, including functional electrical stimulation, can be used to activate muscles for exercise and strengthening. Stepping, cycling, reaching, hand to mouth, or grasping exercises are common functional activities done together with electrical stimulation.
    • Activities of daily living are self-care tasks like bathing, toileting, dressing, feeding, and grooming. For many people with SCI, new or modified techniques for doing daily tasks may be needed. This may involve learning how to use new techniques, special equipment, or learning how to direct caregivers on how to do these tasks.

Returning to community living after an SCI involves planning for suitable living arrangements after rehab and for return to their previous activities. This is done with support from the whole health team and may be led by a social worker or discharge planner. During rehabilitation, activities that help with return to the community may include:

  • Planning for leaving the hospital involves arranging for home modifications, alternative housing, or referral to a long-term care facility or outpatient services.
  • Community resources help individuals locate and utilize services. Access to community groups, peer mentors, transit, home support, personal care assistants, nurses and therapists can assist those returning to community living.Cartoon bills and stacks of coins
  • Managing finances may be another important component of planning for return to the community. It is important to be aware of any disability or tax changes. Social workers can assist individuals to identify these things and plan for any changes.
  • Returning to work depends on the person and their occupation. During rehabilitation, patients often consult a vocational counselor who can help plan for return to work.
  • Returning to recreation and leisure activities may involve working with a recreational therapist on skills and strategies to return to important recreation activities.
  • Driver rehabilitation involves learning how to drive with different levels of physical function, including how to make modifications to vehicles and to get re-tested with a modified license if that is needed.

A team of health care professionals and specialists works in collaboration with an individual and their family members to meet the goals and objectives of Rehabilitation.

Physical therapists helping a person regain walking function with an ekoskeleton and walker

Physical therapists helping a person regain walking function with an exoskeleton.13

  • Physiatrists (Physical Medicine and Rehabilitation Physicians) are medical doctors who specialize in rehabilitation and provide care to individuals with SCI. They help determine if an individual should participate in rehabilitation and treat many of their physical issues.
  • Specialist Physicians offer consultation and specialized treatment related to SCI. These include General Surgeons, Neurologists (nervous system), Urologists (urinary system), Plastic Surgeons (restoration or reconstruction), Orthopedic Surgeons (bone, muscle, and joint), and Neurosurgeons (nerve and brain).
  • Nurses provide consultation services and various forms of direct care such as pain management, bowel and bladder routine management, wound management, and skin care.
  • Pharmacists specialize in the management of medications. They prepare and dispense medications, and provide consultation services to patients and other professionals.
  • Physical therapists (Physiotherapists, PTs) specialize in helping people to maximize their movement and functional independence. Physiotherapists work with individuals on mobility skills like transfers, walking, wheelchair skills, arm movements, the treatment wounds and pain, and may also prescribe mobility devices.
  • Occupational therapists (OTs) specialize in helping people to meet their goals for daily living and functional activities. Occupational therapists work with individuals on developing techniques for daily tasks like bathing, dressing, and eating. They also assess the safety and accessibility of living spaces and prescribe equipment like wheelchairs and braces.
  • Speech-language pathologists (SLPs) specialize in improving speech and swallowing ability, dealing with problems associated with breathing assistance during mechanical ventilation and tracheostomies, and developing communication skills.
  • Therapy assistants (Physical Therapy Assistants, Occupational Therapy Assistants, Speech-Language Assistants, Rehabilitation Assistants) work under the supervision of physical therapists, occupational therapists, and speech-language pathologists. During rehabilitation, they may assist with sitting, self-care, and other therapy tasks.
  • Respiratory therapists (RTs) specialize in the cardiopulmonary (heart and lungs) treatments related to oxygen delivery, suctioning, and mechanical ventilation.
  • Recreation therapists specialize in developing the abilities needed to participate in leisure activities.
    A group of people on wheelchairs socializing with each other

    Peer mentors can offer emotional support and practical advice on living with a SCI.14

  • Social workers specialize in the provision of community resources, support, and counseling related to recovery from mental disorders, and may assist in planning care after hospitalization.
  • Psychologists specialize in the provision of mental health assessments, counseling and psychotherapy for mental disorders, and additional support in coping with psychological or emotional problems.
  • Dieticians specialize in managing the nutritional needs of individuals and groups. They are also involved in meal planning, nutritional assessment and dietary education.
  • Sexual health clinicians specialize in assisting individuals with a meaningful sexual life after illness or injury.
  • Spiritual care professionals (Chaplains) provide counseling related to spiritual, emotional or religious needs.
  • Vocational rehabilitation counselors assist individuals in returning to work.
  • A peer mentor is a person with SCI who provides support during rehabilitation by describing their own experiences in adjusting to life after SCI.

How long you stay in rehabilitation depends on many factors, such as the characteristics of your injury (whether it is complete or incomplete and the level of injury), where you live, and whether you develop new medical problems (such as a pressure ulcer) during rehabilitation.A cartoon calendar

In Canada, the Rick Hansen Spinal Cord Injury Registry collects and analyzes information from participating hospitals and rehabilitation centers for people with traumatic SCI. The most recent statistics from 2016 show that in Canada:

  • People with paraplegia stay in inpatient rehabilitation for an average of 72 days
  • People with tetraplegia stay in inpatient rehabilitation for an average of 83 days

However, these statistics are averages of the whole population and every person and situation is different. Speak to your health provider for more information.

There are several places that a person may go after leaving rehabilitation. Leaving the hospital is called discharge. Sometimes, people may also move between different hospitals during rehabilitation. Before leaving the rehabilitation facility, some individuals stay overnight to adjust to their new arrangements and make sure everything is safe and easy to use.

Home

Some people will return home to the community after rehabilitation. Often, home modifications are needed to make the home accessible and safe for someone who uses a wheelchair or has different accessibility needs than they did before. People who return home from inpatient rehabilitation often may also receive outpatient rehabilitation services for continued care.

Another healthcare or assisted living centre

Other individuals may go to a long-term or transitional care facility, or an independent living facility within the community.

The process of of rehabilitation is complex and can vary in length for many reasons, including characteristics of the injury, where the individual lives, and how much support the individual has. With the aid of specialists from your rehabilitation team, programs can be tailored to help you achieve goals such as developing functional independence, mobility, and adjusting to life with an SCI.

To learn more about rehabilitation and how you can reach your personal goals, speak to your main healthcare provider.

For a review of what we mean by “strong”, “moderate”, and “weak” evidence, please see SCIRE Community Evidence Ratings.

Parts of this page have been adapted from the SCIRE Project “Rehab: From Bedside To Community” page:

Eng JJ. (2014). SCIRE Systematic Review Process: Evidence. In Eng JJ, Teasell RW, Miller WC, Wolfe DL, Townson AF, Hsieh JTC, Connolly SJ, Noonan VK, Loh E, McIntyre A, editors. Spinal Cord Injury Rehabilitation Evidence. Version 5.0: p 1-79.

Available from: http://scireproject.com/about-scire/rehab-from-bedside-to-community/

 

World Health Organization: World Report on Disability 2011. Geneva, Switzerland, World Health Organization, 2011.

Rick Hansen Institute. Rick Hansen Spinal Cord Injury Registry: A look at traumatic spinal cord injury in Canada in 2016. Published May 2017. Accessed September 2017.

Kirshblum SC, Burns SP, Biering-Sorensen F, Donovan W, Graves DE, Jha A, Johansen M, Jones L, Krassioukov A, Mulcahey MJ, Schmidt-Read M, Waring W. International standards for neurological classification of spinal cord injury (revised 2011). J Spinal Cord Med. 2011 Nov;34(6):535-46. doi: 10.1179/204577211X13207446293695.

Wade DT. Goal setting in rehabilitation: an overview of what, why and how. Clin Rehabil. 2009 Apr;23(4):291-5.

Image credits:

Image by SCIRE Community Team

  1. Image by SCIRE Community Team
  2. Aimee in bed ©Rob Cameron, CC BY-NC 2.0
  3. New UPMC East: Emergency patient room ©daveynin, CC BY 2.0
  4. Checklist ©lastspark, CC BY 3.0 US
  5. Therapy ©Vectors Market, CC BY 3.0 US
  6. Image by SCIRE Community Team
  7. Image by SCIRE Community Team
  8. Best Shoes for Nurses ©Esther Max, CC BY 2.0
  9. Image by SCIRE Community Team
  10. Ekso Bionics Ekso ©Ekso Bionics, CC BY-ND 2.0
  11. Revved Up Lab ©Queen’s University, CC BY-NC-ND 2.0
  12. Budget ©Vectors Market, CC BY 3.0 US
  13. Trevor Green ©Simon Fraser University – Communications & Marketing, CC BY 2.0
  14. KPE wheelchair basketball 08 ©University of the Fraser Valley, CC BY 2.0
  15. Calendar ©tezar tantular, CC BY 3.0 US

 

Disclaimer: This document does not provide medical advice. This information is provided for educational purposes only. Consult a qualified health professional for further information or specific medical advice. The SCIRE Project, its partners and collaborators disclaim any liability to any party for any loss or damage by errors or omissions in this publication.